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CharcotMarieTooth Associations Honor a Star. Be a Star. GalaGenerates...



The Charcot-Marie-Tooth Association'ss second annual Honor a Star. Be a Star. Gala recognizing Joe and Sue Paterno for a lifetime of achievement raised a record amount of over $350,000 at the Mandarin Oriental Hotel in New York City on April 29. Proceeds earned from event sponsorship, ticket sales and auction items will be used to support the CMTA'ss Strategy to Accelerate Research (STAR's8482;), an ambitious initiative that has been created to develop new treatments for Charcot-Marie-Tooth disorder (CMT), and a cure within ten years.



Nearly 200 people from the worlds of sports, business and nonprofits were in attendance as Hall of Fame Football Coach Joe Paterno and his wife Sue were honored for their generous contributions to the CMTA. Joe Paterno has served as national spokesperson for the CMTA over the past several years.



The CMTA is proud to have Joe as its official spokesperson, said David Hall, Chief Executive Officer of the CMTA, and we'sre extremely grateful and appreciative of all that Joe and Sue have done not just for the CMTA, but for countless other organizations and communities. The STAR Gala was a great way to recognize and honor them.



The gala kicked off with a VIP reception for special guests and sponsors and featured a meet-and-greet with the Paternos. Platinum sponsors for the 2009 gala included the Livney Foundation and the Putnam Foundation. AFA Protective Systems, INC., Gary Gaspar, Kemark Financial Services, Pamela and Robert Kleinman and the Sanders Firm contributed silver and gold sponsorships.



Highlights of the evening included rousing opening and closing vocal performances by 13-year-old CMT patient Amy de Silva, a moving video-tribute to the Paternos and the presentation of the 2009 Honor a Star. Be a Star. Award. Guests also received the latest scientific updates on medical advances in CMT from leading STAR researchers Dr. Michael Shy and Dr. Steven Scherer.Finally, a lively auction that featured a spectacular lineup of items brought the evening to a conclusion.



About the STAR 's8482; Initiative:


Scientific and technological advances have enabled the Charcot-Marie-Tooth Association to implement an initiative, known as the Strategy to Accelerate Research's8482; (STAR), which is designed to lead to new treatments for Charcot-Marie-Tooth disorder (CMT) within three to five years and possibly to a cure within ten years.



To date, over 40 specific genes known to cause the disorder have been identified. The genetic mutations can now be replicated in the laboratory models and grown as tissue cultures. Spearheaded by an international collaboration of researchers, the STAR initiative will initially involve three projects and focus on the most common form of CMT, type 1A.



For more information, please visit www.charcot-marie-tooth.org.



About the Charcot-Marie-Tooth Association (CMTA):



The CMTA, headquartered in Chester, Pennsylvania, is a 501(C)(3) nonprofit organization founded in 1983. The CMTA goals include providing patient support, public education, promotion of research, and ultimately the improved treatment and cure of CMT. The organization is led by an Chief Executive Officer and governed by a voluntary Board of Directors (BOD), and an international Medical Advisory Board (MAB) comprised of over sixty clinical and research professionals in specialties such as neurology, genetics, orthopedic surgery, physiatry, physical therapy and podiatry. The CMTA Scientific Advisory Board (SAB) is comprised of senior scientists with extensive research experience related to CMT. An External Advisory Board, made up of internationally recognized scientists, serves in an advisory capacity to the SAB. The CMTA has more than 25,000 patients and families, supportive friends, and medical professionals in its member database.



For more information, visit www.charcot-marie-tooth.org.






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